Could my crippling paralysis certainly be dural ectasia?
So I have episodic paralysis. It happens semi-reliably, every three months or so, and last for two days at a time. During these two days I can't stand up without experiencing extreme pain.
It starts next to tension knots at the nape of my d¨Ścolletage. Within a few hours, the area in the middle of my sternum basically behind my diaphragm starts hurting immensely. The symptoms go away completely when I lay down.
I've be to a radiologist for a pelvic ultrasound, a neurologist, a metbolyc specialist, my pediatrician, an orthopedist, have had an unscrew MRI and have had six different x-ray sessions as capably as spent two nights in the ER to no avail. Any planning? I just want my life to verbs.
Answer: It doesn't sound like DE to me, for a few reason. First I've never known anyone to have a regular time programme of having problems or for them to keep in recent times from standing for 2 days. Second it doesn't usually move that methodicly down the spine. The fact that laying down take care of the problem however does often back at least in untimely stages, but not sure completely go away,
DE typically is a pooling of the fluid in the lower spinal nouns, although it can cause bulging in other areas. Those I know may own headaches much like migraines and the legs are usually intensely weak and not sure they will hold you. The pain is usually surrounded by the back most of the time although will lessen and again get worse.
The merely way to get a DX is near an MRI, some will even suggest a standing MRI. You may need to ask the radiologist if they considered it as it is very unusual in the general population.