What hold be YOUR symptoms of Fibromyalgia?
...assuming your either have this disorder or know someone who does...
I have have "it" for 14 yrs and am surprised to find that it has been a very prickly plus physical and progressively declining illness. I just would similar to to get more info from other sufferers...not necessarily from web sites, but from first-hand experiences and trials. Am considering writing a book about this from the perspective of the individual and not just the medical community. Thank you for your input. Write as much as you want...I will read it, I promise.
Answers:
I don't have fibromyalgia, but I have a friend who have been diagnosed and will see if she will speak her piece.
I used to play soccer, now there's not a chance I could. But I can still maintain some acitivities but I in recent times bare in mind that I am going to hurt afterwards. I now dance for massage therapy every 2 weeks to keep everything functioning and ensure I bring a decent sleep as many nights as I can. Without these I would be a crippled mess. Also near the associated stomach issues I still eat whatever I want but there is a time and place for everything and I know infallible foods will not sit well. It's all about self in tune with the body to help minimize and matter with the flare ups. Source(s): http://www.fibromyalgiasource.com
i have had fibro since i be 5--and very active--so teh statement taht those diagnosed with fibro are those tahta re inactive is flase--
at hand are many people that had be active when teh syptoms appeared.
there was a pro athelte near cfids--and yes--i have heard of high shcool athletes near fms
i was very actve until dec of lat year when it finally got too bad--
i used to volunteer contained by EMS--and i worked with young children--i was constanatly moving
my 1st sytoms were a felling taht i couldn't breathe--this started after an accident where on earth i fell about 3-4 feet-landed flat on my back--and my lungs felts as if tehy stuck toegther and i couldn't get any air surrounded by...i also had a head injury shortly before taht that cause me to lose teh vision in my left eye--could enjoy done otehr damage
also--as a child i couyldn't physiclalyt keep up with my peers and be clumsy..
i also had a lot of headaches
i have a knee injury which continued to be very painful for years-depsite teh docs insistingtehre be nothing strcutuarly wrong with teh knee-
teh pain eventually spread to teh other knee--both hips--and than my arms..
scratch an itch --anywehre can casue me to double over in pain----i couldn't understand whyi t was uncomfortable for a boyfriend to massage my shoulders....
when i was 19--i got mono for the 1st time--and teh debiliatting fatigue never go away
i don't regulate my body temp normally
i can't type good due to motor planning issues
even with 10 hours sleep i am still exhaustred and regularly can't even sit up for more tahn 2 hours at a time
twitching--and a bubbling feeling unde my skin than i now know are electrical misfires from my neuro system
i was fundamental the top of my class in high school--now i can barely read a magazine article--my short occupancy memory is horrible
the stiffness gets reaaly bad--i have been incompetent to walk/bend
random nuymbness
i cna't find a doic to work with me--i've been trying for 9 years--the purpose my condition got worse is taht i ran out of meds since docs refused to chat to me--and ended up iwtha migraine--and was never abel to recover
it seem any severe illness ore injury significanlt worsenes rthe condition
in 2002 i had a appropriation from withdrawl from halcion--it seems to reverse my symtoms --80% improvement--but it slowly got worse
i had a 2 hour surgery 2 years ago--and feel about 40% better after ward--those are the only things taht have help
i was illegally fired form my job due to disability discrimination--and overlooked by teh govt ofice charged with enforcing teh ADA--and am now heavuiy contained by debtr
for years i felt like i was suffocating--but my lungs be workiong fine Source(s): i truly beliee taht fms is highly over diagnosed--i have personally knwon 2 populace that ewere misdiagnosed=1 it is actually due to her lifestyle (she volunatillary only sleeps 4-5 hours/night so she has tiem for her social activities)--so as you would expect she is tired and achy--and the other was trying to commit ssdi fraud....while working in child care--getting paid beneath the table--and other things..
many docs lable any pain as fms--but iti s really a specific neuro conditions
many docs still reckon there is inflammtion--there is noty
many still think it is autoimmune--there is no evidence of that
i hold seen a number of people on her where on earth there are red flags taht they are inappropriately diagnosed--liek teh one diagnsoed witha thyroid disorder and fms on teh same day..any competant doc knwos you need to treat the throid earlier exploring teh possibilty of fms---as teh pain and fatigue could just be from teh thyroid..
a number of otehr shave satted that tehy be initially diagnosed with fms--but now knwo that was wrong and hold found teh right diagnosis
BEING UNDER OR OVER ACTIVE CAN CASUE PAIN AN DFATIGUE__BUT NOT REAL FMS
I had a surgery about 5 years ago that put me out of work for 6 months. About the fourth month I be starting to get the crazy feelings on my arms and as we looked things up it all pointed to fibromyalgia. I go back to work shortly after and all symptoms disappeared. I never thought about it again until getting into yahoo. The with the sole purpose thing I have come up with is that it is because we are not getting ample exercise and when we start hurting we slow down more and the more we slow down the worse it gets. The viscous circle and the medical field has no perception of this, or if they are getting their wallets filled on the side, they don't want to know. If you look who has fibromyalgia it's those who are doing things that own little exercise to them. You don't see any athlete's with fibromyalgia. My theory using some of the anatomy I've been through, our body is similar to a big pump that is run by the amount of exercise we get, the more exercise, the better it runs. The less we carry the slower it goes and soon things are backing up in your system and when your muscles want to do some work and they own no nutrients to feed them, they are going to hurt. Remedy, get back out and exercise, and go and get exercise that flexes that big patch of skin on your back or you will end up with things going wrong upstairs as things fund up, like dementia and Alzheimer's. All because we don't get the right amount of exercise, all because we required the good life and when we get it it is adequate to kill you. So get out and start walking, swinging those arms, doing punching jabs that move your whole body. Doing adjectives that, drinking lots of water and in one week you should feel the difference. Why haven't I gone to the medical paddock with this? I have tried. They want to see clinical results before they even nick a second thought about it, so it's by these methods I have been endorsement all the information I have around that they are not using. Now you can quit wondering why our health trouble is so poor, they keep it that way.
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